PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

Condition(s) studied

Study summary

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

Eligibility

Primary outcome measure(s)

• Global analysis of PH patients — From entry into the registry up to 10 years
  Global comparison and analysis of the course of disease of PH patients

Trial sites (1)

More University of Giessen trials in Germany

Other trials for the same condition