Why Patients Decline or Are Being Deemed Ineligible to Receive Home-based Treatment: a Mixed Methods Study
Condition(s) studied
Study summary
Treatment for blood cancers has improved significantly, and more patients are now living longer. However, these treatments are often intensive and long-lasting, and many patients experience serious side effects and symptoms. As more patients require ongoing treatment and long-term care, the demand for haematology services is increasing.
Home-based treatment is expected to play an increasingly important role in the future. It can support more patient-centred care, help patients maintain their everyday lives, improve quality of life, and reduce pressure on hospitals. Despite these benefits, some patients are either not eligible for home-based treatment or choose to decline it. The reasons for this are not yet well understood.
This study combines quantitative data-such as medical information, sociodemographic characteristics, and questionnaire responses about quality of life and health literacy-with qualitative interviews involving patients, relatives, and healthcare professionals. The aim is to identify barriers and differences between patients, and to better understand why some patients opt out of or are unable to participate in home-based treatment.
The findings will help support the development of more inclusive and patient-centred care models, ensure more equal access to home-based treatment, and improve support for socially vulnerable patients. The results will be shared with patients and families through patient organisations, with hospitals through the Treat@Home programme, and at national and international conferences.
Eligibility
Primary outcome measure(s)
- Perceptions - patient — Day 1
Semi-structured interviews with patients at inclusion - Perception - caregivers — Day 1
Semi-structured interviews with caregiver (together with patient) at inclusion - Perception - Healthcare staff — At study completion (end of inclusion of all patients)
Focus group interview with Healthcare staff at end of study (after inclusion of all patients) in regards to barriers and possibilities in home administration
Trial sites (3)
| Facility | City | Region | Status |
|---|---|---|---|
| Copenhagen University Hospital (Rigshospitalet) | Copenhagen | Denmark | |
| Odense University Hospital | Odense | Denmark | |
| Sjællands Universitets Hospital | Roskilde | Denmark |
More Odense University Hospital trials in Denmark
Other trials for the same condition
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
View NCT07634263 on ClinicalTrials.gov ↗ ← All trials in Denmark