iParent2Parent Program: iParent2Parent is an online peer support mentorship program that is based on the iPeer2Peer online peer support mentorship program, which has been established in multiple chronic disease populations as a self-management intervention, including in chronic pain and juvenile idiopathic arthritis populations. The iParent2Parent program connect parents one-to-one with other parents of pediatric solid organ transplant (SOT) recipients who are trained to offer vital peer support and mentorship.
Study summary
The iParent2Parent (iP2P) program is a new, innovative virtual mentorship program that will connect parents one-to-one with other parents of pediatric solid organ transplant (SOT) recipients who are trained to offer vital peer support and mentorship. Parents of children who received a SOT at The Hospital for Sick Children will be invited to participate as mentors and mentees (randomized into the iP2P or control group). The iP2P program can decrease feelings of isolation, improve mental health and have a long-term positive impact on patient health. This research will increase our understanding of one-to-one peer support and leverage eHealth technologies to improve the access to and acceptability of parent peer support interventions.
Eligibility
Sex
ALL
Min age
18 Years
Max age
75 Years
Healthy volunteers
Accepted
Mentee Inclusion Criteria:
* Parent of a patient under 18 years of age who received a solid organ transplant and is at least two months post-transplant,
* Access to a device (e.g., smart phone, tablet, computer) capable of using free WhatsApp software, and
* English-speaking.
Mentor Inclusion Criteria:
* Parent of a patient under 21 years of age who received a solid organ transplant and is at least one year post-transplant,
* Nominated by their child's healthcare team as a good candidate to act in the mentor role (e.g., good communication skills, positive adaptation and adjustment post-transplant, strong support network),
* Access to a device (e.g., smart phone, tablet, computer) capable of using free WhatsApp software, and
* English-speaking.
Exclusion Criteria:
* Non-English speaking.
Primary outcome measure(s)
Recruitment rates and withdrawal rates — Baseline to study completion, an average of 1 year How many participants were recruited and have withdrawn from the program on average over time.
Adherence with the iParent2Parent program — Baseline to study completion, an average of 1 year When the participant completes 10 audio or video calls over 12 weeks and 100% when all online outcome measures completed.
Acceptability (Mentees) — Baseline to 12 weeks after baseline/immediately after the intervention Whether the innovation is agreeable, palatable or satisfactory.
Measured via semi-structured interview or focus group.
Acceptability (Mentors) — Baseline to program completion, an average of one year Whether the innovation is agreeable, palatable or satisfactory.
Measured via semi-structured interview or focus group.
Level of engagement with the iParent2Parent program (Mentees) — Baseline to 12 weeks after baseline/immediately after the intervention Measured via semi-structured interview or focus group.
Level of engagement with the iParent2Parent program (Mentors) — Baseline to program completion, an average of one year Measured via semi-structured interview or focus group.
Barriers and enablers of the iParent2Parent program (Mentees) — Baseline to 12 weeks after baseline/immediately after the intervention Measured via semi-structured interview or focus group.
Barriers and enablers of the iParent2Parent program (Mentors) — Baseline to program completion, an average of one year Measured via semi-structured interview or focus group.
Trial sites (1)
Facility
City
Region
Status
Hospital for Sick Children
Toronto
Ontario
Recruiting
More The Hospital for Sick Children trials in Canada
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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