Active, not recruiting
Phase 1/2
Gene Therapy Study for Children With CLN5 Batten Disease
Condition(s) studied
Neuronal Ceroid Lipofuscinosis CLN5
Investigational drug(s) / intervention(s)
NGN-101
NGN-101: Participants with confirmed mutations in the CLN5 gene who meet all the inclusion and none of the exclusion criteria will be treated with a single intracerebroventricular (ICV) dose and a single intravitreal (IVT) dose of the study treatment.
Study summary
This is a prospective, non-randomized, open-label, dose escalation study of a single administration of gene therapy in children who are 3 to 9 years old with Neuronal Ceroid Lipofuscinosis (Batten) Subtype 5 (CLN5) disease.
Eligibility
Inclusion Criteria
* Age from 3 to 9 years (Child)
* Molecular genetic diagnosis of the CLN5 gene
* Confirmed clinical diagnosis of CLN5 disease
* Impaired motor and/or language function and/or impaired visual acuity
* Written informed consent from parent or legal guardian and assent from study participant, if appropriate
* Able to comply with protocol required assessments (laboratory sample collection, lumbar puncture (LP), nerve conduction studies (NCS), magnetic resonance imaging (MRI), etc.), which may require sedation or general anesthesia
* Able to walk with or without assistance (assistance may include a walker, braces, or with one hand held)
* Agree to reside within a 1-hour drive of the study site for at least 6 months following treatment (or a safely drivable distance for the study participant and caregivers according to investigator's discretion)
Exclusion Criteria
* Has another neurologic disease or illness that may have caused cognitive decline before study entry
* Known pathogenic or clinically suspected variant in a seizure associated genetic mutation besides CLN5
* Any active infections or severe infections within the 30 days prior to study treatment administration
* Presence of a concomitant medical condition that precludes intracerebroventricular (ICV) injection, lumbar puncture (LP), or use of anesthetics needed for study-related procedures
* Presence of any concomitant medical conditions that preclude intravitreal (IVT) administration
* Has status epilepticus that lasts longer than 5 minutes or having more than 1 seizure within a 5-minute period, without returning to a normal level of consciousness between episodes within 12 weeks before study treatment
* Total anti-AAV9 antibody titer greater than 1:400
* Any anticipated need for major surgery in the next 24 months
* Participation in an Investigational New Drug, Investigational Device Exemption, or equivalent clinical study in the past 6 months
* Any prior participation in a study in which a gene therapy vector or stem cell transplantation was administered
* Participation in other investigational studies and non-interventional studies that have similar study assessments as this protocol while the study participant is enrolled in this study with the exception of sister studies sponsored by Neurogene
* History of or current chemotherapy, radiotherapy, or other immunosuppressive therapy within the past 3 months
* Use of prohibited medications
* Immunizations of any kind in the 45 days prior to study treatment
* Requiring daytime or nighttime ventilatory support at the time of Screening
* Any item which would exclude the study participant from being able to undergo brain magnetic resonance imaging (MRI) according to local institutional policy
* Known allergies or hypersensitivities to the required immunosuppression regime
Primary outcome measure(s)
- Incidence of Treatment Emergent Adverse Events (TEAEs) — 5 years (multiple visits)
Incidence, type, severity, and frequency of TEAEs
- Incidence of Serious Adverse Events (SAEs) — 5 years (multiple visits)
Incidence, type, severity, and frequency of SAEs
- Incidence of clinical laboratory abnormalities — 5 years (multiple visits)
Incidence, type, severity, and frequency of clinical laboratory abnormalities
- Incidence of new nerve conduction study (NCS) abnormalities — 5 years (multiple visits)
Incidence, type, severity, and frequency of new nerve conduction study (NCS) abnormalities
- Incidence of new physical and neurologic exam abnormalities — 5 years (multiple visits)
Incidence, type, severity, and frequency of new physical and neurologic exam abnormalities
Trial sites (2)
| Facility | City | Region | Status |
| University of Rochester |
Rochester |
New York |
|
| Great Ormond Street Hospital for Children |
London |
United Kingdom |
|
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