This is an international, multicentre, prospective, non-interventional, observational Registry of patients with X-Linked hypophosphatemia (XLH). The main objective of this XLH Registry is to collect data to characterise the treatment, progression and long-term outcomes of XLH in both adult and paediatric settings.
| Facility | City | Region | Status |
|---|---|---|---|
| Hopital Universitaire des Enfants Reine Fabiola | Brussels | Belgium | Active Not Recruiting |
| Universitair Ziekenhuis Brussel | Brussels | Belgium | Active Not Recruiting |
| Cliniques Universitaires Saint-Luc | Brussels | Belgium | Active Not Recruiting |
| UZA | Edegem | Belgium | Active Not Recruiting |
| Universitair Ziekenhuis Gent | Ghent | Belgium | Active Not Recruiting |
| UZ Leuven | Leuven | Belgium | Active Not Recruiting |
| CHU de Liège | Liège | Belgium | Active Not Recruiting |
| SHATPD "Prof Ivan Mitev" EAD | Sofia | Bulgaria | Active Not Recruiting |
| UMHAT "SofiaMed", OOD | Sofia | Bulgaria | Active Not Recruiting |
| Children Hospital | Brno | Czechia | Active Not Recruiting |
| Fakultni nemocnice v Motole | Prague | Czechia | Active Not Recruiting |
| Aalborg University Hospital | Aalborg | Denmark | Active Not Recruiting |
| Århus Universitetshospital - Aarhus sygehus | Aarhus | Denmark | Active Not Recruiting |
| Århus Universitetshospital | Aarhus | Denmark | Active Not Recruiting |
| Hospital South West Jutland | Esbjerg | Denmark | Completed |
| Rigshospitalet - Paediatric | København Ø | Denmark | Active Not Recruiting |
| Rigshospitalet | København Ø | Denmark | Completed |
| OUH | Odense | Denmark | Active Not Recruiting |
| Groupe Hospitalier Pellegrin - Hôpital des Enfants | Bordeaux | France | Active Not Recruiting |
| CHU de Lyon - Hôpital Femme Mere Enfant | Bron | France | Active Not Recruiting |
| CHRU Lille | Lille | France | Active Not Recruiting |
| Hopital Roger Salengro - CHU Lille | Lille | France | Active Not Recruiting |
| Hopital Arnaud de Villeneuve | Montpellier | France | Active Not Recruiting |
| CHU de Nantes | Nantes | France | Active Not Recruiting |
| Hôpital Cochin | Paris | France | Active Not Recruiting |
| CHU Paris Sud - Hopital Bicêtre | Paris | France | Active Not Recruiting |
| Hôpital Bicêtre | Paris | France | Active Not Recruiting |
| "Hopital Pierre-Paul Riquet Centre de Rhumatologie" | Toulouse | France | Active Not Recruiting |
| Hopital Purpan | Toulouse | France | Active Not Recruiting |
| Klinikum Ernst-von-Bergmann Potsdam und Bad Belzig | Bad Belzig | Germany | Active Not Recruiting |
| Uniklinikum Bochum | Bochum | Germany | Withdrawn |
| Uniklinikum Koeln | Cologne | Germany | Withdrawn |
| MVZ Dr. Eberhard & Partner | Dortmund | Germany | Withdrawn |
| Universitaetsklinikum Freiburg | Freiburg im Breisgau | Germany | Withdrawn |
| Medizinische Hochschule Hannover | Hanover | Germany | Active Not Recruiting |
| Universitaetsklinikum | Leipzig | Germany | Active Not Recruiting |
| Hormon and Stoffwechselzentrum | Mainz | Germany | Active Not Recruiting |
| Semmelweis Egyetem | Budapest | Hungary | Active Not Recruiting |
| Semmelweis Egyetem | Budapest | Hungary | Active Not Recruiting |
| The Children's University Hospital | Dublin | Ireland | Active Not Recruiting |
+ 78 more sites — see the full list on the official registry below.
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
View NCT03193476 on ClinicalTrials.gov ↗ ← All trials in the UK