Recurrent respiratory papillomatosis (RRP) is a rare disease. However, it is the most common benign laryngeal tumor in children. To date, no epidemiological data are available in France. The aim of this study is to establish the epidemiology of juvenile PPR.
Eligibility
Sex
ALL
Min age
—
Max age
—
Healthy volunteers
No
Inclusion Criteria:
* Patients with juvenile PRR (disease onset before age 18)
* Followed in the :
* The MALO CRMR
* One of the MALO network's CCMRs
* One of the main correspondent centers
Exclusion Criteria:
* Patients objecting to the collection of their personal data
* Parents of minor patients objecting to the collection of their child's personal data
Primary outcome measure(s)
Epidemiology of juvenile RRP in France by clinical information — 10 years age at onset of disease, symptoms, severity score, intensity of disease characterized by need for endoscopies
Epidemiology of juvenile PRR in France according to vaccine and adjuvant therapeutic information — 10 years Vaccination and adjuvant therapy information
Epidemiology of juvenile PRR in France by paraclinical information — 10 years results of pulmonary imaging, genetic, anatomopathological and immunological tests
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
We use cookies to analyse site traffic and improve your experience. With your consent, we may also use cookies for advertising. You can change your choice at any time.
