Personalized Massive Online Open Course After Childhood Cancer
Condition(s) studied
Investigational drug(s) / intervention(s)
MOOC: Registrants will be offered a personalized e-education consisting of 3 to 11 modules adapted to the treatment received in childhood by each in the form of a MOOC entitled "Cancer in childhood, living well after" over a total duration of about 3 to 7 weeks of training.
No intervention: Patients will be followed up until 18 months only
Study summary
Many studies have shown Childhood Cancer Survivors (CCS) are ill-informed about long-term follow-up (LTFU). Massive open online courses (MOOCs) could easily allow a deployment at an international level and make reliable information available for all CCS, wherever they live. The MOOC team (specialists of LTFU care, communication professionals and CCS associations), bringing together nearly 130 people, designed a MOOC named "Childhood Cancer, Living Well, After" including three modules addressing transversal issues (lifestyle, psychological support, fertility problems) and eight modules covering organ-specific problems.
Eligibility
Primary outcome measure(s)
- Proportions of former patients with overall adherence to their recommended care pathway. — MONTH 18
The impact of the MOOC will be measured qualitatively by comparing the two groups "with MOOC" and "without MOOC" of the proportions of former patients with an overall adherence to the care pathway recommended to them.
Trial sites (1)
| Facility | City | Region | Status |
|---|---|---|---|
| CHU de SAINT-ETIENNE | Saint-Etienne | France |
More Centre Hospitalier Universitaire de Saint Etienne trials in France
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
View NCT05233189 on ClinicalTrials.gov ↗ ← All trials in France