Cohorte: Assessment of postural wheelchair disorders, as well as PW pain, and pressure ulcers associated with sitting
Study summary
This database will describe sitting postural control in wheelchair, as well as PW pain, and pressure ulcers associated with sitting, in patients with neuromuscular disease (NMD).
Eligibility
Sex
ALL
Min age
8 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria :
* Patient with neuromuscular disease
* Written informed consent (IC) obtained
* Adult patients (\> 18 years) Or
* Adults under guardianship who has given theirs oral consent and guardian's consent obtained Or
* Childs who has given theirs oral consent and parents' consent obtained
* Wheelchair user
Exclusion Criteria :
• Patient not seen in positioning consultation by N. Pellegrini and / or E. Dupitierr
Primary outcome measure(s)
Description of postural wheelchair disorders in the neuromuscular disease population — At the beginning and the end of the study, an average of 6 months Measurement of Posture by the tool: Measurement of Postural Control in Seated Postural Control Measure for Adults 2.0 (SPCMA 2.0) score (0 = normal, 1 = mild, 2 = moderated and 3 = severe)
Trial sites (2)
Facility
City
Region
Status
Groupement Hospitalier Intercommunal du Vexin / Site d'Aincourt - Pôle Soins de Suite et de Réadaptation spécialisés
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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