First Affiliated Hospital of Fujian Medical University
Phase
Observational
Started
2019-07-05
Last updated
2021-03-22
Condition(s) studied
Amyotrophic Lateral Sclerosis
Study summary
Amyotrophic lateral sclerosis (ALS) is a kind of motor neuron degeneration disorder without effective therapy. This registered cohort study will provide further insights into the clinical course of ALS, and investigate disease-relative risk factors and the genetic background of Chinese ALS patients.
Eligibility
Sex
ALL
Min age
—
Max age
—
Healthy volunteers
No
Inclusion Criteria:
* Amyotrophic Lateral Sclerosis patients fulfilling the El Escorial criteria (including definite, probable and possible)
* Progressive muscular atrophy
* Primary lateral sclerosis
* Progressive bulbar palsy
Exclusion Criteria:
* History of serious head trauma or neuropsychiatric disease
* Decline to participate
Primary outcome measure(s)
Age at death — 10 years the time when patient die
Age of endotracheal intubation or tracheotomy — 10 years the time for the patient accepted endotracheal intubation or tracheotomy
Trial sites (1)
Facility
City
Region
Status
Department of Neurology, First Affiliated Hospital of Fujian Medical University
Fuzhou
Fujian
Recruiting
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This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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