Effects of Nurse-Led Stigma-Reduction Education in Epilepsy

Condition(s) studied

Investigational drug(s) / intervention(s)

Nurse-Led Stigma-Reduction-Based Epilepsy Education: Participants in the intervention group will receive a structured nurse-led epilepsy education program focused on reducing stigma and supporting disease disclosure and self-management. The program will consist of four weekly sessions lasting approximately 45-60 minutes each. The sessions will address epilepsy-related knowledge and misconceptions, stigma and internalized stigma, concealment and disclosure of epilepsy, communication, medication adherence, seizure triggers, stress management, seizure diary use, and individualized self-management planning.

Study summary

This randomized controlled trial aims to evaluate the effect of a nurse-led, stigma-reduction-based epilepsy education program on perceived/internalized stigma, concealment of epilepsy, and self-management among adults with epilepsy.

Participants will be randomly assigned to an intervention group or a control group. The intervention group will receive a structured nurse-led education program consisting of four weekly sessions, each lasting approximately 45-60 minutes. The program will address epilepsy-related knowledge and misconceptions, stigma and self-stigma, disclosure and concealment of epilepsy, communication, medication adherence, seizure triggers, stress management, seizure diaries, and individual self-management planning. The control group will receive routine care without additional structured education during the study period.

Outcomes related to epilepsy stigma, concealment, and self-management will be assessed using validated measurement tools.

Eligibility

Primary outcome measure(s)

• Change in Epilepsy-Related Stigma — Baseline and immediately after completion of the 4-week intervention
  Epilepsy-related stigma will be assessed using the Epilepsy Stigma Scale. Total scores range from 25 to 100, with higher scores indicating greater epilepsy-related stigma (a worse outcome).
• Change in Concealment of Epilepsy — Baseline and immediately after completion of the 4-week intervention
  Concealment of epilepsy will be assessed using the Concealment of Epilepsy Scale. Total scores range from 15 to 75, with higher scores indicating greater concealment of epilepsy (a worse outcome).
• Change in Epilepsy Self-Management — Baseline and immediately after completion of the 4-week intervention
  Epilepsy self-management will be assessed using the Epilepsy Self-Management Scale. Total scores range from 38 to 190, with higher scores indicating more frequent use of epilepsy self-management behaviors (a better outcome).

Trial sites (1)

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