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Starting soon Observational

Malnutrition and Sarcopenia Among Primary Ciliary Dyskinesia

NCT07740538 · tracked via the Priya Life Science Turkey tracker
Phase
Observational
Started
2026-08-03
Last updated
2026-07-31

Condition(s) studied

Primary Ciliary Dyskinesia (PCD)

Investigational drug(s) / intervention(s)

Physical assessments of individuals

Physical assessments of individuals: Participants will be evaluated in terms of nutritional status, anthropometric measurements (waist circumference, hip circumference, waist-to-height ratio, skinfold measurements) and body composition, pulmonary functions, anaerobic capacity, muscle strength.

Study summary

The prevalence and causes of malnutrition and sarcopenia in children and adolescents with Primary ciliary dyskinesia (PCD) have not been sufficiently elucidated. The aim of this study is to investigate the prevalence of malnutrition and sarcopenia in children and adolescents with PCD.

Eligibility

Sex
ALL
Min age
6 Years
Max age
18 Years
Healthy volunteers
No
Inclusion Criteria: Inclusion criteria for children and adolescents with PCD 1. Unexplained neonatal respiratory distress, lateralization defect, productive cough, bronchiectasis, daily nasal congestion, and pansinusitis, as well as laboratory tests such as high-speed video microscopy, transmission electron microscopy, or genetic testing according to the European Respiratory Society diagnostic guidelines. 2. Cooperative individuals, 3. Individuals who have never smoked 4. Willingness to participate in the study Inclusion criteria for healthy children and adolescents: 1\. Voluntary participation in the study Exclusion Criteria: Exclusion criteria for children and adolescents with PCD: 1. Individuals with any acute, chronic, or systemic illness other than PCD 2. Individuals who smoke or are quitting smoking 3. Individuals who are not willing to participate in the study 4. Individuals who are uncooperative

Primary outcome measure(s)

  • Handgrip Muscle Strength in Participants — From enrollment to the end of treatment at 1 year
    Bilateral grip strength in children and adolescents with PCD will be measured in kgF using a hand dynamometer.

Trial sites (1)

FacilityCityRegionStatus
Izmir Democracy University Izmir Turkey (Türkiye)

Other trials for the same condition

Official registry record

This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.

View NCT07740538 on ClinicalTrials.gov ↗ ← All trials in Turkey