Person-centred care at distance through an eHealth platform
Person-centred care at distance through an eHealth platform: Person-centred care at distance through an eHealth platform, used by professionals, patients and relatives
Study summary
The goal of the research project EAPER-P is to evaluate PCC person-centred care (PCC) in the form of a combined eHealth and telephone support for patents with chronic pain. A developed PCC eHealth platform, together with person-centred telephone conversations, will be used as a tool to identify patients´ resources to enhance coping and living with their illness by means of a dialog and partnership with staff and relatives. PCC in the form of a combined eHealth and telephone support will not replace, but instead be used as add on treatment to usual care (guideline directed care).
In addition, a process evaluation of the intervention will be performed in order to evaluate the mechanisms behind the intervention and evaluate which parts of the interventions the participants find useful.
Eligibility
Sex
ALL
Min age
18 Years
Max age
65 Years
Healthy volunteers
No
Inclusion Criteria:
* Men and women 18-65 years old.
* Living with chronic, non-malignant, pain with any of the following diagnoses: M25, M54, M79 and R52
* On sick leave (full or part time) from paid professional work.
* Willing to participate
Exclusion Criteria:
* Full time sick leave \>24 months (part time sick leave \>24 months can be included).
* Severe impairment (cognitive or other) that prevents patient from using the eHealth support
* No registered address
* Not willing to participate
* Any severe disease with an expected survival \<12 months
* Ongoing documented diagnosis of alcohol or drug abuse
* Other severe disease that can interfere with follow-up or if the intervention is assessed as a burden
* Patient participating in another conflicting randomized study
* Patients not understanding spoken and written Swedish
* Patient not having access to a device with internet access
Primary outcome measure(s)
Composite score of changes — Baseline, 3 months, 6 months, 1 year, 2 years, 5 years. A patient is classified as improved, deteriorated or unchanged:
A patient is classified as improved if:
at 6 months reduced sick leave and increased General self-efficacy scale by ≥ 5 units
A patient is classified as deteriorated if:
at 6 months increased sick leave or (if on full-time sick leave at inclusion reduced general self-efficacy by ≥ 5 units)
Those who have neither deteriorated nor improved are considered unchanged
General Self-Efficacy Scale: Possible scores range from 10 (low self-efficacy, worst) to 40 (high self-efficacy).
Composite score possible scores: deteriorated (worst), unchanged, improved (best).
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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