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Clinical Trials in Spain / NCT06205953
Recruiting Observational

A EUropean REgistry and Sample Sharing networK to Promote the Diagnosis and Management of Light Chain Amyloidosis (EUREKA)

NCT06205953 · tracked via the Priya Life Science Spain tracker
Sponsor
Fondazione IRCCS Policlinico San Matteo di Pavia
Phase
Observational
Started
2024-01-01
Last updated
2026-04-16

Condition(s) studied

AL Amyloidosis

Study summary

A prospective patients' registry collecting all new cases of AL amyloidosis evaluated at referral Centers from across Europe and a sample sharing network will be created to study mechanisms of the disease through the use of advanced molecular technologies and big data analysis tools.

Eligibility

Sex
ALL
Min age
18 Years
Max age
99 Years
Healthy volunteers
No
Inclusion Criteria: * diagnosis of systemic AL amyloidosis; * treatment-naïve; * age ≥18 years; * ability to understand and willingness to sign an informed consent; * planned follow-up at participating center. Exclusion Criteria: * non-AL amyloidosis; * previous treatment for AL amyloidosis.

Primary outcome measure(s)

  • Mortality at 24 months by stage — 24 months from diagnosis
    Mortality at 24 months by stage will be evaluated

Trial sites (6)

FacilityCityRegionStatus
Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672 Heidelberg Germany Recruiting
Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100 Pavia Italy Recruiting
UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan Utrecht Netherlands Recruiting
Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra Pamplona Spain Recruiting
University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics Muttenz Switzerland Active Not Recruiting
Universidad de la Republica Hospital de Clinicas "Dr Manuel Quintela" Montevideo Uruguay Recruiting

Other trials for the same condition

A Study to Evaluate the Efficacy and Safety of CAEL-101 in Patients With Mayo Stage IIIb AL Amyloidosis (CARES) Active, not recruiting
A Study to Evaluate the Efficacy and Safety of CAEL-101 in Patients With Mayo Stage IIIa AL Amyloidosis (CARES) Active, not recruiting
Official registry record

This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.

View NCT06205953 on ClinicalTrials.gov ↗ ← All trials in Spain