The design of the intervention is an ongoing process which will consist of two phases: a determination of the intervention using the Delphi-modified consensus method and an assessment of its acceptability, as described in the methodological recommendations of the Medical Research Council Guidance.
Eligibility
Sex
ALL
Min age
18 Years
Max age
—
Healthy volunteers
Accepted
Inclusion Criteria:
* Healthcare professionals who are members of the 3 CPTSs included and who agree to participate
* Adult informal carers of patients living with Alzheimer's disease or a related dementia from the 3 CPTS who agree to participate
* University experts: general practitioners, geriatric mobile team doctor, advanced practice nurse, clinical psychologist, biostatistical methodologist. Some of them had already taken part in the steering committee for ISAMA's exploratory qualitative and quantitative studies.
Exclusion Criteria:
\- Professional carers
Primary outcome measure(s)
description of the tailored primary care intervention to manage the burden of caring for patients living with Alzheimer's disease (or related dementia) — 12 months A list of interventions will be submitted to 3 panels of participants using the DELPHI method (panel of carers, panel of healthcare professionals and panel of academic experts). Each participant will rate his or her agreement with each of the proposals with a score ranging from 1 (strongly disagree) to 9 (strongly agree).
For each proposal, the proportion of scores \>= 7, the proportion of scores between 4 and 6 and the proportion of scores \<=3 will be estimated. Proposals with at least 70% of ratings \>= 7 are retained. Proposals with at least 70% of scores \<= 3 are eliminated. Proposal with at least 70% of scores between 4 and 6 will be reformulated by the members of the scientific committee and reproposed in the following round.
It usually takes between 3-4 rounds to eliminate/validate proposals: the complex intervention will be built on the consensus reached in theses rounds and reported using the TIDieR checklist model.
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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