Transition model: Transition of follow-up care of childhood cancer survivors to adult care
Study summary
The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.
Eligibility
Sex
ALL
Min age
16 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria:
* 5-year survivor of childhood cancer
* Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)
* Age at diagnosis \<18 years
* Age at study ≥16 years
* At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition).
* Written informed consent
Exclusion Criteria:
* Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)
* \<5 years after therapy of a relapse or palliative situation
* Severe cognitive impairment, which makes it impossible to complete the questionnaire independently
* Insufficient knowledge of the German language
* Informed consent form not signed
Primary outcome measure(s)
Cancer Worry as part of transition readiness — Change from baseline to 3 month and 15 month Assessment via validated "Cancer Worry Scale"
Self-management as part of transition readiness — Change from baseline to 3 month and 15 month Assessment via validated "Self-Management Skill Scale"
Evaluation of needs for ongoing care as part of transition readiness — Change from baseline to 3 month and 15 month Assessment via validated "Scale for ongoing Care"
Evaluation of expectation for transition as part of transition readiness — Change from baseline to 3 month and 15 month Assessment via validated "Expectation Scale"
Trial sites (3)
Facility
City
Region
Status
Division of Oncology - Hematology, Department of Pediatrics, Kantonsspital Aarau
Aarau
Switzerland
Recruiting
Division of Oncology/ Hematology, University Children's Hospital Basel
Basel
Switzerland
Recruiting
Division of Oncology/ Hematology, Department of Pediatrics, Kantonsspital Lucerne
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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