The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: \[How\] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Eligibility
Sex
FEMALE
Min age
16 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria:
* living in a European country
* 16 years or older
* having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
* fluent in a language spoken by the research team
Exclusion Criteria:
* not meeting one of the inclusion criteria
Primary outcome measure(s)
Lived experiences self-managing endometriosis (Qualitative narratives through interviews and diary studies) — From enrollment until the end of focus group participation, up to four years People will discuss their lived experiences self-managing endometriosis, discussing what everyday actions they do to feel their best (qualitative narratives, lived experiences collected through interviews and diary studies)
Trial sites (1)
Facility
City
Region
Status
Leeuwenborch
Wageningen
Netherlands
Recruiting
More Wageningen University and Research trials in the Netherlands
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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