Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.
Eligibility
Sex
ALL
Min age
18 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria:
* Age ≥18
* Confirmed diagnosis of autoimmune MG
* Shortness of breath in daily life: score 1 or 2 on the respiration item on the MG- activities of daily living score
* Signed consent form
* Affiliated to or beneficiary of a social security scheme
Exclusion Criteria:
* Known Pregnancy
* Known respiratory disorder (other than MG)
* Recent (within past 4 weeks) respiratory infection
* Current MG crisis or exacerbation (necessitating increase in MG medication \&/or hospital admission)
* No dyspnea - score 0 or 3 on the respiration item on the MG- activities of daily living score
* Severe cognitive impairment/guardianship
Primary outcome measure(s)
Dyspnea questionnaires — baseline Dyspnea-12
Trial sites (1)
Facility
City
Region
Status
Institute of Myology
Paris
France
Recruiting
More Institut de Myologie, France trials in France
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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