Survey: The study utilised a 16-item questionnaire to evaluate the quality of information received during antenatal diagnosis consultations and its congruence with subsequent experiences following birth and hospitalisation of the infant. The questionnaire encompassed seven questions pertaining to consultation arrangements, including duration, frequency and unit visits, six questions addressing the received information, and three questions exploring the long-term outcomes of the child.
Study summary
The objective of this questionnaire study is to evaluate the concordance between the information provided to parents during antenatal consultations and their subsequent experiences following childbirth.
Eligibility
Sex
FEMALE
Min age
18 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria:
* Patients were observed at the multidisciplinary prenatal diagnosis centre.
* Patients who had attended at least one antenatal consultation with a pediatric neonatologist
* Patients who gave birth between January 2020 and December 2022 and whose newborn was hospitalized in the neonatology department
Exclusion Criteria:
* a child who died in hospital or had a condition with a high risk of death in the first few years of life
* non-French speaking mothers
* Mothers who were minors at the time of the study
Primary outcome measure(s)
Question 8 of the questionnaire — The outcome is measured at the time of questionnaire completion, typically at hospital discharge or within one week post-discharge. In summary, did the information provided during the consultation with the paediatrician correspond to the events that transpired during your child's hospitalisation ? Patients are invited to indicate their level of agreement or disagreement with a series of four statements by selecting one of four options : 'not at all', 'to some extent', 'almost' or 'completely'.
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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