Impact of the Use of Allogeneic Hematopoietic Stem Cell Transplantation in Reunion Island Patients: Quality of Life, Determinants of Choices and Financial Repercussions
questionnaire: * quality of life score: FACT-BMT
* decisional conflict scale
* Discreet Choice Experiment questionnaire
Study summary
This project aims to document and analyse - with a three-fold anthropological, psychosocial and economical approach - the consequences of the geographical distance from mainland France on the alloSCT on both patients, their caregivers and the healthcare system. It is organised in 3 working packages (WP).
Eligibility
Sex
ALL
Min age
18 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria:
* patients diagnosed with hematological malignancy (myeloid acute leukemia, lymphoid acute leukemia, non-hodgkin lymphoma, Hodgkin disease, or myelodysplasic syndrome
* candidate to an allogeneic hematopoietic stem cell transplantation in mainland France ;
* Residing in Reunion Island
* Age \>18 year old;
* who accept or not allogeneic hematopoietic
* Able to complete a questionnaire
Exclusion Criteria:
* Opposition to participation and collection of their data
* Person deprived of liberty by judicial or administrative decision, and person subject to legal protection (guardianship or curators)
Primary outcome measure(s)
Quality of life Functional Assessment of Cancer Therapy - Bone Marrow Transplantation questionnaire. (FACT-BMT questionnaire) — 24 months
Trial sites (1)
Facility
City
Region
Status
CHU de la Réunion
Saint-Pierre
France
More Centre Hospitalier Universitaire de la Réunion trials in France
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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