Northern Sydney and Central Coast Area Health Service
Phase
Observational
Started
2023-06-09
Last updated
2023-11-02
Condition(s) studied
TransitionType 1 Diabetes Mellitus
Study summary
This research project seeks to address the question of how to improve the transition of patients with type 1 diabetes mellitus from the paediatric to the adult health service at RNSH and Mona Vale Community Health Centre (seeking the perspectives of patients, families, and staff)?
Eligibility
Sex
ALL
Min age
16 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria:
Adolescents who have an existing diagnosis of type 1 diabetes mellitus and who underwent (in 2020 to 8th June, 2023) or who are undergoing (from 9th June, 2023 and subsequent cohorts) transition from paediatric care to adult health care at Royal North Shore Hospital and Mona Vale Community Health Centre. Adolescents with type 1 diabetes will be 16 years or older
A family member or caregiver of the participant of the adolescent patient with type 1 diabetes mellitus
A staff member who is a member of the patient's treating diabetes team within the paediatric diabetes service (first study visit and second study visit) and young adult diabetes service (third study visit)
Exclusion Criteria:
There are no specific exclusion criteria
Primary outcome measure(s)
Patient self-efficacy (patient, family and staff member) relating to diabetes — From 9th June, 2023, ongoing for initial period of 5 years with interim sequential reviews From prospective questionnaires, with higher scores indicative of higher self-efficacy
Diabetes knowledge questionnaire (patient and family member) — From 9th June, 2023, ongoing for initial period of 5 years with interim sequential reviews From prospective questionnaires, with a single correct answer per question
Diabetes-related distress (patient and family member) — From 9th June, 2023, ongoing for initial period of 5 years with interim sequential reviews From prospective questionnaires, with higher scores indicative of higher distress levels
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
We use cookies to analyse site traffic and improve your experience. With your consent, we may also use cookies for advertising. You can change your choice at any time.