International HIT-MED Registry (I-HIT-MED)

Condition(s) studied

Study summary

The I-HIT-MED registry registers clinical of children and adults with medulloblastoma, ependymoma, pineal tumours, or choroid plexus tumours in Germany and other countries that fulfil national ethic requirements for participation in this registry. These tumours are rare diseases, and many patients are treated outside of clinical trials. The I-HIT-MED registry allows collection of data und biological material from those patients, and provides a basis for standard treatment recommendations and counselling. It aims to improve the international cooperation and the medical knowledge in these rare diseases. Within the I-HIT-MED registry, it is a goal to maintain and improve networks for quality assurance in national groups where they are already established, and to support the implementation in national groups, where there is no quality assurance network yet.

Eligibility

Primary outcome measure(s)

• Event free survival — 10 years
  Due to the explorative character of the registry, outcome measures are not strictly defined. We added the most common outcome measures.

Trial sites (57)

+ 17 more sites — see the full list on the official registry below.

More Universitätsklinikum Hamburg-Eppendorf trials in Germany