Registry Study of Assistive Devices, Medicines and Healthcare Measures in ALS, SMA and Other Neurological Diseases.

NCT05852418 · tracked via the Priya Life Science Germany tracker

Sponsor

Ambulanzpartner Soziotechnologie APST GmbH

Phase

Observational

Started

2015-10-30

Last updated

2025-01-29

Condition(s) studied

Amyotrophic Lateral Sclerosis

Study summary

This registry study aims to collect data on the provision of assistive devices, medicines, and other healthcare measures, such as ventilation therapy and nutrition support, in patients with Amyotrophic lateral sclerosis (ALS), Spinal muscular atrophy (SMA) and other neurological disorders. The data collected should describe the clinical practice, meaning real-world evidence and patient-reported outcomes.

Eligibility

Sex

ALL

Min age

18 Years

Max age

—

Healthy volunteers

Inclusion Criteria: Diagnosis of a chronic neurological disease - Exclusion Criteria: Lack of cooperation and unwillingness to store and share medical data collected in the registry study \-

Primary outcome measure(s)

The systematic recording of neurological treatment and its evaluation by patients via specific questionnaires — 10 years
The systematic recording of neurological treatment and its evaluation by patients via specific questionnaires

Trial sites (16)

Facility	City	Region	Status
Christoph Münch	Berlin	Germany	Recruiting
Neurologische Klinik und Poliklinik, Universitätsklinikum Bergmannsheil	Bochum	Germany	Recruiting
Klinik für Neurodegenrative Erkrankungen und Gerontopsychiatrie, ALS-Ambulanz und Huntington Ambulanz, Universitätsklinikum	Bonn	Germany	Recruiting
Klinik und Poliklinik für Neurologie, Medizinische Fakultät Carl Gustav Carus, Technischen Universität Dresden	Dresden	Germany	Recruiting
Neurologische Klinik, ALS-Ambulanz, Alfried Krupp Krankenhaus Rüttenscheid, Essen	Essen	Germany	Recruiting
Klinik für Neurologie, Universitätsmedizin, Georg-August-Universität Göttingen	Göttingen	Germany	Recruiting
ALS- und Muskelambulanz, Medizinische Hochschule Hannover	Hanover	Germany	Recruiting
Neurologie und Poliklinik, Universitätsklinikum	Heidelberg	Germany	Recruiting
Ambulanz für Neuromuskuläre und Motoneuron-Erkrankungen, Universitätsklinikum Jena	Jena	Germany	Recruiting
Klinik und Poliklinik für Neurologie	Leipzig	Germany	Recruiting
Klinik für Neuroogie-Präzisionsneurologie, Universitätsklinikum Schleswig-Holstein, Universität zu Lübeck	Lübeck	Germany	Recruiting
Neurologisches Klinik, Ambulanz für Motoneuronerkrankungen und ALS, Diakonissenkrankenhaus	Mannheim	Germany	Recruiting
Universitätklinikum	Mannheim	Germany	Recruiting
Klinik und Poliklinik für Neurologie, Klinikum rechts der Isar der Technischen Universität München	München	Germany	Recruiting
Klinik für Schlafmedizin und Neuromuskuläre Erkrankungen, Westfälische Willhelms-Universität Münster	Münster	Germany	Recruiting
Klinik für Innere Medizin, Neurologie, UKM Marienhospital Steinfurt	Steinfurt	Germany	Recruiting

Other trials for the same condition

Pridopidine Phase 3 Study to Evaluate Efficacy and Safety in ALS Recruiting

French-German Cohort Study to Determine Factors Associated With Weight Loss in Amyotrophic Lateral Sclerosis Recruiting

A Substudy of LY4256984 in Participants With Sporadic Amyotrophic Lateral Sclerosis Recruiting

FUNCtion ALS: Aiming to Restore UNC13A Function in People Living With ALS Recruiting

A Study Evaluating the Safety and Tolerability of QRL-201 in ALS Active, not recruiting

Official registry record

This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.

View NCT05852418 on ClinicalTrials.gov ↗ ← All trials in Germany