Long term follow-up of patients with chronic lymphocytic leukemia (CLL), B-prolymphocytic leukemia (B-PLL), T-cell prolymphocytic leukemia (T-PLL), Small lymphocytic lymphoma (SLL), T/Natural Killer large granular lymphocyte leukemia (T or NK-LGL), Hairy cell leukemia (HCL) and Richter's transformation
Eligibility
Sex
ALL
Min age
18 Years
Max age
—
Healthy volunteers
No
Inclusion Criteria (all must apply)
1. Confirmed diagnosis of CLL, B-PLL, T-PLL, SLL, T or NK-LGL, HCL or Richter's transformation
2. 18 years of age or older
3. Signed, written informed consent
4. Presence of one or more of the following disease situations:
* Newly diagnosed patients without treatment indication (eligible for watch and wait Approach Treatment within a clinical trial according to the AMG or status post participation in a clinical Trial)
* Treatment with standard therapies approved for the eligible entities or status post treatment (outside of clinical trials)
* Referral for evaluation the indication for HSCT
* Relapsed disease status (even if first diagnosis was prior to activation of the registry)
Exclusion Criteria
1. Patients without confirmed diagnosis of CLL, B-PLL, T-PLL, SLL, T or NK- LGL, HCL or Richter's transformation
2. Cerebral dysfunction, legal incapacity
Primary outcome measure(s)
Overall Survival — from date of registry entry until date of death, up to 12 years Overall survival will be measured from date of registry entry until date of death
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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