The goal of this observational study is to evaluate the functional performance of the upper extremity joints (scapula, shoulder, elbow, and wrist) in haemophilic children and compare muscle strength and ADL limitations with healthy children.
Eligibility
Sex
MALE
Min age
7 Years
Max age
17 Years
Healthy volunteers
Accepted
Inclusion Criteria:
* Diagnosed with Hemophilia A or B
* Receiving prophylaxis treatment (a routine treatment)
* Negative for inhibitors at the time of enrollment
Exclusion Criteria:
* Positive for inhibitors at the time of enrollment
* Acute elbow bleeding
* History of acute muscle bleeding
* History of surgery in any upper extremity joints
* Having undergone radionuclide synovectomy
Primary outcome measure(s)
Hemophilia Joint Health Score — Through study completion, an average of 1 year The Hemophilia Joint Health Score (HJHS) is a clinical tool used to assess joint health in individuals with hemophilia, focusing on major joints such as the knees, elbows, and ankles. It evaluates symptoms like pain, swelling, and range of motion restrictions, with a grading system that helps determine the severity of joint damage. The HJHS also considers joint function in daily activities, making it an essential tool for monitoring joint health and the progression of hemophilic arthropathy. It plays a vital role in both clinical management and research, helping guide treatment strategies and assess their effectiveness.
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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