Peer mentor intervention: Peer mentor delivered intervention for transitions to adult-oriented treatment for eating disorders
Study summary
Participants will be males and females aged 16-24 with an eating disorder (ED) diagnosis who are transitioning to adult-oriented ED treatment in Nova Scotia, New Brunswick, or Prince Edward Island. Youth participants will be recruited from community-based clinics, hospital programs, and private practices where ED treatment is delivered. Youth who are interested in participating and provide written consent will be invited to take part in a screening meeting to determine eligibility to participate. Eligible participants will be paired with a peer mentor for a 3-6 month intervention to guide them through the transition to adult-oriented ED treatment. Participants will be asked to complete questionnaire packages before beginning the intervention, after completing the intervention, and 12 months after beginning the intervention. Some youth participants, as well as some of their carers and the peer mentors, will be asked to participate in one-on-one interviews about their experiences with transitions in ED care and the peer mentor intervention. The investigators are conducting this study to determine whether the use of peer mentors is an effective and acceptable means of transition support for youth with EDs. The investigators are also interested in better understanding the experiences of carers and peer mentors who are supporting youth with EDs during their transition in care.
Eligibility
Sex
ALL
Min age
16 Years
Max age
24 Years
Healthy volunteers
No
TAY Inclusion Criteria:
* Meets one of the following criteria:
* 'Aging out' of youth-oriented ED treatment at 19 years-old and unlikely to achieve remission prior to leaving the program (as determined by their clinician\[s\])
* Have been deemed incompatible with traditional youth-oriented ED treatment (based on established youth-oriented ED treatment criteria, and determined by their clinician\[s\])
* Have requested and/or had a carer request a transition to adult-oriented ED treatment
* Have been self-referred or referred to adult ED treatment by a clinician (even if they have not been involved in youth-oriented ED treatment)
* Aged 16-24 years old
* Meets criteria for DSM-5 diagnosis of an ED, as confirmed by the Structured Clinical Interview for DSM-5 Research Version (SCID-5-RV)
* Virtually signed informed consent form
TAY Exclusion Criteria:
* Insufficient knowledge of English
* Moderate to high suicide risk rating at screening as assessed by the Columbia Suicide Severity Rating Scale (CSSRS; at the discretion of the PI)
Carer Inclusion Criteria:
* Identified by a TAY participant as a carer
* Aged 18 or older
* Virtually signed informed consent form
Carer Exclusion Criteria:
• Insufficient knowledge of English
PM Inclusion Criteria:
* Certified PM with EDNS
* Providing PM support to TAY study participants
* Virtually signed informed consent form
PM Exclusion Criteria:
• Insufficient knowledge of English
Primary outcome measure(s)
Change in Autonomous Motivation — Baseline, 3-6 months, 12 months This will be measured at Baseline, Post-Intervention, and 12-Month Follow-Up, using The Treatment Self-Regulation Questionnaire (TSRQ; Levesque et al., 2007). The TSRQ is a reliable and valid self-report questionnaire that assesses the type of motivation patients use (autonomous or external/controlled) when engaging in a health behaviour or treatment. The TSRQ consists of 12 questions with scores ranging from 1 ("strongly disagree") to 7 ("strongly agree"). The TSRQ can be modified to measure specific health care outcomes (e.g., ED related). Further, the TSRQ has previously been used to detect changes in autonomous motivation before and after health-related interventions, including over six-month timeframes (e.g., Stamp et al., 2016; Knittle et al., 2015). A recent scoping review determined that there are no validated quantitative measures for specifically evaluating mental health related transition interventions for TAY (Cleverly et al., 2018).
Trial sites (1)
Facility
City
Region
Status
Abbie J Lane Memorial Building - QEII
Halifax
Nova Scotia
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This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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