Supporting Patients by Family Education in Psychotic Illness Group
Supporting Patients by Family Education in Psychotic Illness Group: Psychoeducation for families supporting young adults with psychosis.
Study summary
Background: A lack of education, resources, and support for family carers of young adults with psychotic illnesses leaves them ill-equipped to support their loved one. Although family support groups exist, few groups offer evidence-based, skills-focused, psychoeducation taught by certified professionals and provided on a public-health level. By equipping families with skills and knowledge, public healthcare harnesses a powerful ally to maintain community stabilization.
Aims: The primary study goal is to implement a psychoeducation intervention for family carers supporting young adults with psychosis to reduce family burden and foster community stabilization of service users.
Methods: A longitudinal pre-post design will be used to assess the long-term effectiveness of the psychoeducation intervention for family carers supporting a young adult with psychosis on service utilization and functional indexes. Nine expert-reviewed, and family peer-informed psychoeducation modules are administered in 2-hour sessions over 9 weeks to family carers.
Conclusion: Presenting the novel approach of an expert-reviewed, peer-informed psychoeducation intervention for family carers, with a focus on knowledge and skill development, the researchers contribute to literature and best practice in patient and family-centered care.
Eligibility
Sex
ALL
Min age
17 Years
Max age
27 Years
Healthy volunteers
No
Inclusion Criteria:
* Young adult service user is aged 17-27 at time of recruitment
* Young adult service user has had an admission or discharge from an Alberta Health Services or Covenant Health psychiatric unit for psychosis in the Edmonton Zone within previous 12-months
Exclusion Criteria:
* Not proficient in English
* Young adult service user has NOT had an admission or discharge from an Alberta Health Services or Covenant Health psychiatric unit for psychosis in the Edmonton Zone within previous 12-months
Primary outcome measure(s)
Family Burden Interview Schedule — Baseline-Day 0 (Pre-intervention) assesses overall burden of the family related to supporting a loved one with addiction and mental health concerns, including the following domains: financial, routines and activities, leisure, relationships, physical health, mental health
Family Burden Interview Schedule — 9-Week Follow-Up (Post-Intervention) assesses overall burden of the family related to supporting a loved one with addiction and mental health concerns, including the following domains: financial, routines and activities, leisure, relationships, physical health, mental health
Family Burden Interview Schedule — 6-Month Follow-Up (Post-Intervention) assesses overall burden of the family related to supporting a loved one with addiction and mental health concerns, including the following domains: financial, routines and activities, leisure, relationships, physical health, mental health
Family Burden Interview Schedule — 24-Month Follow-Up (Post-Intervention) assesses overall burden of the family related to supporting a loved one with addiction and mental health concerns, including the following domains: financial, routines and activities, leisure, relationships, physical health, mental health
Positive and Negative Symptom Schedule — Baseline-Day 0 (Pre-intervention) assesses overall symptom severity of service users, including 7 positive symptoms (e.g., hallucinations, grandiosity, etc.), 7 negative symptoms (e.g., blunted affect, emotional withdrawal) and general symptoms (e.g., anxiety, lack of judgement/insight, poor impulse control)
Positive and Negative Symptom Schedule — 9-Week Follow-Up (Post-Intervention) assesses overall symptom severity of service users, including 7 positive symptoms (e.g., hallucinations, grandiosity, etc.), 7 negative symptoms (e.g., blunted affect, emotional withdrawal) and general symptoms (e.g., anxiety, lack of judgement/insight, poor impulse control)
Positive and Negative Symptom Schedule — 6-Month Follow-Up (Post-Intervention) assesses overall symptom severity of service users, including 7 positive symptoms (e.g., hallucinations, grandiosity, etc.), 7 negative symptoms (e.g., blunted affect, emotional withdrawal) and general symptoms (e.g., anxiety, lack of judgement/insight, poor impulse control)
Positive and Negative Symptom Schedule — 24-Month Follow-Up (Post-Intervention) assesses overall symptom severity of service users, including 7 positive symptoms (e.g., hallucinations, grandiosity, etc.), 7 negative symptoms (e.g., blunted affect, emotional withdrawal) and general symptoms (e.g., anxiety, lack of judgement/insight, poor impulse control)
Manchester Short Assessment of Quality of Life — Baseline-Day 0 (Pre-intervention) assessing service user quality of life on a scale of 1 (couldn't be worse) to 7 (couldn't be better) and "yes/no" for select items.
Manchester Short Assessment of Quality of Life — 9-Week Follow-Up (Post-Intervention) assessing service user quality of life on a scale of 1 (couldn't be worse) to 7 (couldn't be better) and "yes/no" for select items.
Manchester Short Assessment of Quality of Life — 6-Month Follow-Up (Post-Intervention) assessing service user quality of life on a scale of 1 (couldn't be worse) to 7 (couldn't be better) and "yes/no" for select items.
Manchester Short Assessment of Quality of Life — 24-Month Follow-Up (Post-Intervention) assessing service user quality of life on a scale of 1 (couldn't be worse) to 7 (couldn't be better) and "yes/no" for select items.
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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