World Bleeding Disorders Registry

Condition(s) studied

Study summary

The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.

Eligibility

Primary outcome measure(s)

• Number of participants recruited — 5 years
• Number of participating Hemophilia Treatment Centres — 5 years
• Number of participating countries — 5 years

Trial sites (1)

Other trials for the same condition