Effect of Incentive Integrated E-IBD Chronic Disease Management Model on the Quality of Life in IBD Patients

Condition(s) studied

Investigational drug(s) / intervention(s)

education ,psycological support and social support: we would give targeted-education according to our patients' need(reflected via questionnaire; we would provide psycological and social support to patients based on their need reflected by questionnaire

Study summary

This study aims to prospectively explore the effect of incentive-integrated E-IBD (electronic inflammatory bowel disease) chronic disease management model on the improvement of IBD quality of life, and provide a more effective chronic disease management model for improving the quality of life and social participation of IBD patients.The investigators firstly identify the IBD patients in need of empowerment disease activities through the questionnaire .Then, the investigators feedback the patients' education content according to their needs found.Based on the social support network of patient organization and the medical support network of tertiary medical institutions, the investigators complete the empowerment process of IBD patients' self-management initiative and self-management ability, through the internet. Finally ,the investigators evaluate the quality of life(QoL), social participation,disease self-management level via questionnaire . The primary outcome is the improvement of QoL score after three months' intervention.

Eligibility

Primary outcome measure(s)

• Improved score of Quality of Life after three months — three months
  Improvement score of quality of life via short inflammatory bowel disease questionnaire(SIBDQ, score scale:0\~70 points) after intervention for three months,higher scores mean better quality of life.

Trial sites (4)

More Second Affiliated Hospital, Zhejiang University, School of Medicine trials in China

Other trials for the same condition