Children With Medical Complexity (CMC)Symptom ManagementNurse-led Supportive CareSelf EfficacyHome Care Services
Investigational drug(s) / intervention(s)
Nurse-led integrated home service
Nurse-led integrated home service: Nurse-led integrated home service to support parents in Symptom Management for Children With Respiratory Support for a 3-month period.
Study summary
The aims of this study are to test the effectiveness of a nurse-led integrated home health service to enhance parental self-efficacy in symptom management for children requiring respiratory support, and alongside identify factors facilitating or deterring the program implementation.
A single group pre-post quasi-experimental study on parents of CMC requiring respiratory support.
Parents will be recruited from non-government organizations, with an estimated sample size of 80 parents. Self-administrated questionnaire, and semi-structured interview guide will be used for data collection.
Eligibility
Sex
ALL
Min age
6 Months
Max age
22 Years
Healthy volunteers
No
Inclusion Criteria:
1. parent of a child with respiratory support aged 6-month to 22 years old
2. having a Smartphone
3. able to communicate in Chinese or in English
4. living with his/her child at home.
Exclusion Criteria:
1. a reported mental health disorder
2. engaging in other structured programs related to symptom management
3. living in an area with no internet coverage
Primary outcome measure(s)
Caregiving Self-efficacy — Time Frame: Day 0, Month 3, Month 6 The scale consists of 18 items to measure the self-efficacy of Chinese caregivers. It is rated on a 9-point scale, with 1= no confidence, to 9 =full confidence.
Implementation evaluation — Time Frame: month 6 Semi-structured interviews will be conducted to the related community stakeholders to evaluate the quality of service provided. Semi-structured interview guide will be used to collect qualitative data in four perspectives including:
1. reach: document the number of participants, and retention in the intervention
2. adoption: seek to find out if the intervention is appropriate and in action
3. implementation: understand stakeholders' perception if the intervention is acceptable and implemented as planned
4. maintenance: explore the facilitators and barriers in the sustainability of the nurse-led integrated home service
Trial sites (2)
Facility
City
Region
Status
School of Nursing The Hong Kong Polytechnic University
Hong Kong
China
Not Yet Recruiting
School of Nursing The Hong Kong Polytechnic University
This page summarises publicly available registry data for informational purposes — not medical advice. Eligibility is determined by each study team; patients should discuss participation with their clinician.
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